IN CONVERSATION WITH Nicole Liedemann Telukram
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In a powerful act of love, advocacy, and endurance, Nicole Liedemann Telukram is now eight days into a remarkable 45-day, 1,800-kilometre walk from Johannesburg to Cape Town. Her mission? To raise urgent awareness and funds for Dercum’s Disease, a rare and painfully misunderstood condition her husband Shaun—also known as Sathish—has been battling for years.
Shaun is one of just four South Africans formally registered with Rare Diseases South Africa as living with Dercum’s Disease, a debilitating condition marked by multiple painful fatty tumors (lipomas). Due to its rarity, the disease remains underdiagnosed, underfunded, and largely unknown—even within the medical community.
Shaun is one of just four South Africans formally registered with Rare Diseases South Africa as living with Dercum’s Disease, a debilitating condition marked by multiple painful fatty tumors (lipomas). Due to its rarity, the disease remains underdiagnosed, underfunded, and largely unknown—even within the medical community.